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LATEST HIGHLIGHTS

SneakPeek content can still be seen!

Sneak Peek Week will remain active and therefore accessible for a further 4 weeks as from today. Please feel free to come back and visit the special site

Welcome

With COVID-19 being at the centre of the world medical stage, EAU Patient Information is focusing on the global need for accurate and trustworthy information by creating a Frequently Asked Questions (FAQs) page specific to COVID-19 and patients who have urological cancer. The FAQs page is available on the EAU Patient Information website.

Healthcare professionals
You may be a healthcare provider working with patients who have cancer and similarly have many questions at the present time. For example you may be wondering, what advice can I give to my patients, or to my medical team, regarding COVID-19?  This question and many more that you may have are very important and we really want to hear from you about the things that concern you right now. A multidisciplinary team of medical experts is in place to find the best answers to your questions and to share them on our FAQs page.

Our FAQs page will be continually updated as our medical experts find answers when more is known about COVID-19 and how it is affecting people with cancer worldwide. We are proud to be working with our sponsor Astellas Pharma* to help you access information which best serves your care needs. At EAU we are here to help you and we very much appreciate your assistance in helping us.

Digital School logo

Take part in the EURORDIS Digital School 2020!

The next Digital School webinar will take place on 29 July on the topic of how to build engaged online communities. You can also create an account for the EURORDIS Open Academy online platform to take part in the series of e-learnings and webinars that make up the 2020 Digital School, all 100% online and free!

alejandro.cuenca@eurordis.org

#WCW2020 #ContinenceMatters.

 

 

Yesterday was the final day of the WFIPP virtual World Continence Week 2020.

Our thanks to all who have ‘taken a peek’ and participated. This virtual event has been a resounding success in helping to connect people, provide information and raise awareness of continence issues throughout the world.

We would like to inform you that as a special service we have decided that all all the content published during this unique Sneak Peek Week will remain active and therefore accessible for a further 4 weeks as from today. Please feel free to come back and visit the special site at your leisure and browse through the content. There is sure to be something of interest to you. And please spread the word!

Special thanks to all those organizations and others who allowed us to access their content, thank you to INNUO for doing a brilliant job in actually putting everything together and producing the Sneak Peek Week and thanks to Medtronic for supporting the initiative.

STATEMENT FROM THE WFIPP EXECUTIVE COUNCIL

There has been a recent change in the name of WFIPP.

The new acronym WFIPP stands for World Federation for Incontinence and Pelvic Problems.

This to reflect the updated Statutes and also compliance with the new regulations in Italy where WFIPP is currently registered.

But nothing has changed in our determination and drive to raise awareness about continence issues and of course look after the interests of patients and their famillies throughout the world.

So please take part next week in the World Continence Week Virtual Sneak Peek Week.

We have really tried to put together a great array of topics and links to informative sources, tools, blogs,podcasts and much more from across the globe. Something for everyone in these Covid-19 times.

See the link for the landing page which will go “live”  just before 15th  June.

You will be able to access all the content at:

http://sneakpeakweekwcw20.org/

Please do spread the word and make sure this very special campaign week is a success.

Thank you

The WFIPP Executive Council.

EU4Health statement for more and better coordinated European health policy!

Shaping the future of health in the EU together has therefore never been more urgent. To this end, members of the EU4Health coalition, which EPF is co-leading together with EPHA, have pooled their strengths together in a joint EU4Health statement, calling to act now for a stronger and more ambitious European health policy.

Sign EU4Health statement for more and better coordinated European health policy!

DATA SAVES LIVES – FIRST TWEET CHAT ON HOW TO COMMUNICATE ABOUT HEALTH DATA

Anyone can participate--just log on to Twitter at 13:00 on 4 June

 

 

On 4 June at 13:00 CET the Data Saves Lives initiative will host its first tweet chat on how patient groups can best communicate on the topic of health data, especially during these unprecedented times.

The live tweet chat features an expert panel comprising the Dutch Patient Federation (Patientenfederatie Nederland), the International Niemann-Pick Disease Registry, Ange Bradshaw from Alzheimer Europe, and patient expert and multiple sclerosis blogger, Birgit Bauer.

The live tweet chat features an expert panel comprising the Dutch Patient Federation (Patientenfederatie Nederland), the International Niemann-Pick Disease Registry, Ange Bradshaw from Alzheimer Europe, and patient expert and multiple sclerosis blogger, Birgit Bauer.
To learn more about Data Saves Lives, head to the dedicated webpage via this link.

Web-based digital platform

An ambitious project is about to be launched by WFIP(P) , supported by the technical expertise and resources of the web company, INNUO, based in Barcelona.
The project has already begun, with the distribution of the online questionnaire released a few days ago and which will end by 20th March, 2020. The data collected from this questionnaire will be used to set up a web-based platform, catering to the need for up-to-date information on all aspects of incontinence, including clinical practices, patient-centred activities, best practices etc.
It is a two-year project funded in the first instance by Medtronic with the co-operation of the global web company INNUO as outlined above. The first year will be used to set up the website (7 languages) and the second year will be for dissemination of the web-based ‘tool’.
At WFIP(P) we are extremely enthusiastic and optimistic about the project. Please see below the introductory power point about the project.

Your urgent participation is required. Please disseminate the questionnaire to all your members, patients and interested parties.

The time line is short and we urgently need your responses.
Please see alongside all the links for the seven languages.
Please note the questionnaire is entirely anonymous and all responses will be anonymized

Thank you for your cooperation.
This project is very much in the interest of all patients,carers, hcp, et patients, caregivers, healthcare professionals, physical therapists,continence nurses, researchers, etc.

LATEST EVENTS

EAU 20 AMSTERDAM

Important announcement

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WFIP UK Workshop, London, 25th February

WFIP UK Workshop, London, 25th February ‘The economic burden of incontinence’ WFIP is pleased to…

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LATEST NEWS

MAY 15th, Online conference MALE URINARY INCONTINENCE

15 May 2020 11-13:20 Tehran Local Time ON NEW GENERATION OF ARTIFICIAL URINARY SPHINCTER ZSI…

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EUROPEAN PATIENTS FORUM STATEMENT

The COVID-19 outbreak and the associated public health crisis presents an unprecedented challenge to national…

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WEBSITE PLATFORM PROJECT ON ITS WAY!

Steering Committee online workshop for the WFIPP web platform project 30th April, 2020Thursday, 30th April,…

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IMPORTANT UPDATE!

Due to the difficulties still arising from the unstable situation caused by COVID19, the WFIPP…

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PARADIGM — FROM GAPS TO BRIDGES

THE FUTURE OF PATIENT ENGAGEMENT IN CENTRAL AND EASTERN EUROPE   The hashtag#workshops on hashtag#patientengagement…

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EYEFORPHARMA — ON DEMAND SESSIONS AVAILABLE UNTIL MAY, 2020.

  EYEFORPHARMA offered an amazing opportunity to participate in its virtual event some days ago.…

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World Continence Week 2020 15-21 June 2020

Further details and the 2020 toolkit in the process of preparation. Soon to be released…

MISSION

For people living with incontinence and pelvic floor dysfunction, WFIPP’s mission is to:

JOIN US

WFIPP is mostly comprised of patient advocacy organizations, though doctors, non-government organizations, and non-commercial entities are welcome to become members of the WFIP. If you want to join us, please contact us here.

Be the patient voice
Be heard in society and by policy-makers
Be a global umbrella for national organizations
Encourage an open public debate and break stigma and taboos
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