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Extended questionnaire deadline

Important announcement 27th March
Questionnaire relating to the WFIPP web-based platform on incontinence

In the light of the current situation surrounding COVID-19, the WFIPP Executive Council and our partnering web company INNUO have decided to keep the questionnaires online for the coming period.
The WFIPP is keen to move forward with the next steps and your input is vital.
So please continue to disseminate the questionnaire which is available in seven languages as per the link below.

COVID19 Resource Point

Welcome to EPF’s
COVID19 Resource Point
We are pleased to launch the newly established COVID19 Resource Point (https://www.eu-patient.eu/COVID-19/covid-resource-point/) on our website!

To ensure that you are kept abreast of the most relevant and reliable information regarding the COVID-19 pandemic, we reached out to Prof. Jean-Michel Dogné, Head of the Department of Pharmacy at the University of Namur and expert at the European Medicines Agency (EMA) for advice. With his and some members’ input, we have decided to package the most relevant and credible resources affecting the patient community on a weekly basis and send to our subscribers.

Feel free to share this information online or with your colleagues and friends.
Facts and Figures
reliable COVID-19 information from trusted sources
Check these sites on a daily basis for up-to-date statistics on COVID-19:

World Health Organisation (WHO) Situation Reports(https://www.who.int/emergencies/diseases/novel-coronavirus-2019/situation-reports)
European Centre for Disease Prevention and Control (ECDC) Situation Update(https://www.ecdc.europa.eu/en/geographical-distribution-2019-ncov-cases)
Johns Hopkins University COVID-19 Global Dashboard (includes Recoveries)(https://www.arcgis.com/apps/opsdashboard/index.html#/bda7594740fd40299423467b48e9ecf6)

WFIPP COVID 19 CORONAVIRUS

Rest assured WFIPP is using this “lockdown time” wisely to consolidate and move ahead with all our actions and projects and the work we have committed to carry out in line with in our vision and mission to serve the community. As a member of the European Patients Forum – EPF, the WFIPP Executive Council fully endorses and supports this prouncement from EPF. WFIPP is monitoring all developments especially in view of our upcoming events between now an June 2020.

On Wednesday 10 March, the World Health Organization declared the COVID-19 outbreak a pandemic. WHO Director-General Tedros Adhanom Ghebreyesus said the situation will worsen and that countries will need to “strike a fine balance between protecting health, minimizing economic and social disruption and respecting human rights.”1 

The European Patients’ Forum calls on EU Member States to act rapidly and follow WHO’s advice to contain the spread of COVID-19 as far as possible, testing widely, and taking measures to ensure that health systems have sufficient capacity.  

Ensure patients’ access to timely and safe treatment  
Patients with chronic conditions are at particular risk of serious illness and death from COVID-19 – data collected so far show that risks include being old and having diabetes, heart disease, immunosuppression, respiratory disease and hypertension. Persons with multiple conditions are at particular risk. This is a significant part of the population: across Europe, 150 million people live with a chronic condition, and some 50 million with multimorbidity.  

We call for Member States to put in place effective strategies for protecting those who are most vulnerable. In particular, countries should give all possible support to their hospitals and healthcare staff.  

The situation in Italy shows that patients’ lives are endangered when hospitals are overwhelmed. In addition to COVID-19, some patients with chronic conditions, for example cancer and other life-threatening diseases, as well as acute patients, will still need urgent medical care.  

Solidarity needed  
Countries have divergent health system capacity, and some are struggling with finding the resources to deal with the pandemic. We call on the European Commission to take rapid action in concert and in solidarity to ensure the continuing supply of vital medicines, protective gear and equipment such as respiratory machines where they are needed.  

EPF stands in solidarity with those affected by the crisis, in Europe and globally. Many of the patient organisations in our community are providing timely information updates for their communities regarding COVID-19. We recommend authorities to work with their country’s patient organisations to ensure effective flow of information and to answer their concerns. 

Everyone can show solidarity. We all know someone who is vulnerable – a parent, a sibling, a friend. Healthy people can protect themselves and others by following the advice of public health authorities.2 Behavioural changes made by individuals– such as hand hygiene, no handshakes, self-isolation, avoiding travel and social gatherings – help by slowing the spread of the virus and “flattening the epidemic curve”3 – this is critical to ensure the healthcare system can continue to function.  

The COVID-19 crisis is rapidly revealing gaps and weaknesses in our health systems, putting the cohesion and unity of the European Union to a test. It also shows that strengthening health systems is not only a national matter – it is an urgent European and global health policy priority.

URGENT!

Web-based digital platform

An ambitious project is about to be launched by WFIP(P) , supported by the technical expertise and resources of the web company, INNUO, based in Barcelona.
The project has already begun, with the distribution of the online questionnaire released a few days ago and which will end by 20th March, 2020. The data collected from this questionnaire will be used to set up a web-based platform, catering to the need for up-to-date information on all aspects of incontinence, including clinical practices, patient-centred activities, best practices etc.
It is a two-year project funded in the first instance by Medtronic with the co-operation of the global web company INNUO as outlined above. The first year will be used to set up the website (7 languages) and the second year will be for dissemination of the web-based ‘tool’.
At WFIP(P) we are extremely enthusiastic and optimistic about the project. Please see below the introductory power point about the project.

Your urgent participation is required. Please disseminate the questionnaire to all your members, patients and interested parties.

The time line is short and we urgently need your responses.
Please see alongside all the links for the seven languages.
Please note the questionnaire is entirely anonymous and all responses will be anonymized

Thank you for your cooperation.
This project is very much in the interest of all patients,carers, hcp, et patients, caregivers, healthcare professionals, physical therapists,continence nurses, researchers, etc.

New dates!

Following the cancellation of the EAU event in ORIGINALLY scheduled for the end of March please note the new date. The 35th EAU Annual Conference will take place in Amsterdam from Friday, 17th to Tuesday, 21st July 2020. The wfipp –eau workshop will take place between 17th and 21st July. All information regarding the wfipp workshop will be notified accordingly on the website.

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MISSION

For people living with incontinence and pelvic floor dysfunction, WFIP’s mission is to:

JOIN US

The WFIP is mostly comprised of patient advocacy organizations, though doctors, non-government organizations, and non-commercial entities are welcome to become members of the WFIP. If you want to join us, please contact us here.

Be the patient voice
Be heard in society and by policy-makers
Be a global umbrella for national organizations
Encourage an open public debate and break stigma and taboos
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