La Segreteria Nazionale della FINCOPP
Viale Orazio Flacco, 24
70124 – Bari
Tel: Centralino: 080-5093389
24 /24: 080-5619181
Contact: Francesco Diomede
Position: Honorary President WFIP
PromoCon is an integral service of the charity Disabled Living North West, based in the UK.
It provides impartial information and advice to both healthcare professionals and the general public in relation to children and adults with bowel and/or bladder problems. We are recognised as the leading national / international source of information regarding continence products, equipment and services. We also provide high quality study days, tailor made training and the annual Continence Symposium. Working in partnership with industry, we offer a consultancy service in such areas as continence research and product development.
A range of free down-loadable resources, including the ‘Talk about…’ range for children, are available from the PromoCon website.
Bladder Health UK
Kings Court, 17 School Road, Hall Green, Birmingham B28 8JG
Advice Line: 0121 702 0820
Contact person: Suzanne Evans
Position: Business Director
DD: 0121 702 0820/0821
Mob: 07860 515105
Email General: firstname.lastname@example.org
Disabled Living (PromoCon) Bladder and Bowel UK
Our address: Bladder and Bowel UK (formerly PromoCon), Disabled Living, Burrows House, 10 Priestley Road, Wardley Industrial Estate, Worsley, Manchester, M28 2LY
Contact person: Debra Evans
Position: Chief Executive
0161 607 8206
Telephone Helpline: 0161 607 8219
Fax: 0161 607 8201
Our general email address: email@example.com
The National Association For Continence (NAFC)
National Association For Continence is a national, private, non-profit 501(c)(3) organization dedicated to improving the quality of life of people with incontinence. NAFC’s purpose is to be the leading source for public education and advocacy about the causes, prevention, diagnosis, treatments, and management alternatives for incontinence www.nafc.org
The National Foundation for Continence
Contact person: Steven G. Gregg, PHD
Position: Executive Director
The Simon Foundation for Continence
The Simon Foundation for Continence was founded in 1983 in the United States, followed in 1985 by Simon Canada (now called the Canadian Continence Foundation). The foundation is a 501(c)(3) organization. The mission of the Simon Foundation for Continence is to: “Bring the topic of incontinence out into the open, remove the stigma surrounding incontinence, and provide help and hope to people with incontinence, their families and the health professionals who provide their care.”
The Underactive Bladder Foundation
5836 Ferree ST
Allegheny County, Pittsburgh
Contact: David Chancelllor B.S.
Position: Director and Treasurer
UroConti Association brings together people with incontinence problems. It is a non-profit organization that has over 500 members. UroConti was founded in 2007 by a group of active people who wanted to help themselves and other patients experiencing the problem. Anyone who suffers from incontinence may be a member of the Association and actively participate in its activities. UroConti works to improve the life quality of patients with incontinence problem. Click here to view a recent study of the impact of urinary incontinence on social and economic costs in Poland.
The mission of UroConti Association is:
- improve the quality of life for patients with a urinary incontinence (UI) problem;
- provide support for patients with incontinence and their families;
- spread knowledge on methods of treatment;
- raise public awareness of UI;
- cooperate with other patient organizations;
- implement statutory tasks of the Association.
Members of the Association may:
- participate in gymnastic exercises to strengthen their pelvic floor muscles (the classes are taught by experienced therapists),
- attend open medical lectures conducted by doctors and other specialists,
- receive advice from the medical consultants of the Association,
- participate in activities that are aimed at improving the life quality of people with incontinence,
- benefit from the knowledge and support of other members of the Association.
UroConti Association’s regional branches include:
International Continence Society meeting 2009, Cairo, Egypt
In attendence at the meeting were Tomasz Michalek, Poland, and Nancy Muller, USA.
‘To Live a Normal life’
Dyrektor Prograam NTM
Ul. Hajoty 49,
Contact: Thomasz Michalek
A voluntary, independent patient organization dedicated to help those suffering from incontinence. Our aim is to make everyone feel comfortable when speaking about incontinence.
What is the main content of our activities?
• provide advice to new patients who have just been diagnosed with the disease,
• inform patients about news in health care,
• contribute their experience and advice of the legislative process,
• establish collaboration between doctors and patients,
• spreading the awareness about the disease to the public …
We also provides a platform – forum for the exchange of experience, information, advice, and also to discuss among doctors, patients, relatives, government etc.
Executive Director: Marcia Lascekova
Sinoba: The Association for Knowledge about Urinary Incontinence and Bladder Problems
Sinoba is a non-profit organization, founded in 2004. We include men and women of all ages as well as children.
Sinoba´s mission is to spread information about problems concerning urinary incontinence and other bladder problems and to raise awareness to get enough resources. Our vision is to create a community where everybody with problems of the bladder and urinary tract will get the healthcare they need, feel total social acceptance, and have a good quality of life.
The Canadian Continence Foundation
Founded in 1986, The Canadian Continence Foundation (formerly The Simon Foundation for Continence Canada) is the only canadian national non-profit organization serving the interest of people experiencing incontinence. The organization is led by people with incontinence and by professionals from all health disciplines. The Canadian Continence Foundation is supported by donations from the public healthcare professionals and private industry.
Contact Person: Jacqueline Cahill
Malta Continence Care Association
The Malta Continence Care Association is a non-profit organization, founded in 2007, dedicated in helping people with bowel and bladder incontinence.The members of the committee representing this association are from various spheres of health care, with the aim of providing a service that covers a holistic approach to towards continence care and promoting research into incontinence and other related problems. The MCCA provides professional and public awareness on the implications of incontinence and how this can be prevented. MCAA’s mission is to continually improve the quality of life of people with incontinence.Incontinence Services are housed within the Ministry of Education, Family, and Employment under the Ministry of Social Policy.
Japan Continence Action Society
JCAS focuses on the promotion of appropriate care management, prevention and treatment of voiding disorders, support, education, providing professional care to all people, and intelligence management provided with research and development. JCAS also works with businesses and aims to contribute to society so that everyone can have control of their bladder.
INCOCENTRAS is a non – profit organization, established in 2005.
Our aim is:
- To consult incontinent people about the methods used to cure incontinence and teach incontinent people to live with incontinence if they can not be treated.
- To raise awareness about incontinence among the society.
- To improve the compensation of inco product for incontinent people.
- To work with policy makers, raising the awareness of problem.
- To represent incontinent people at state institutions.
- To work with health institutions, to teach nurses about incontinence.
Uganda Network of AIDS Service Organizations (UNASO)
Contact person: Joshua Wamboga
Position: Executive Director
Board Chair Elect, International Alliance of Patients’ Organizations (IAPO);A global Patient Voice
Tel: +256 414 274730 Mob: +256 755831021
Email: firstname.lastname@example.org and Wamboga@unaso.or.ug
Patient Safety and Access Initiative of the India Foundation
F 9, 2nd Floor, Kailash Colony Greater Kailish, Enclave – 1
110048 Delhi India
Contact: Bejon Kumar Misra
Position: Founder Director, International Consumer Policy Expert
Mobile: +91-9311044424, +91-9811044424 Phone & Fax: +91-11-40537140
Mário João Gomes
Head of Urogynecology, Neurourology, Urodynamics Unit
Urology Department – St. António Hospital Oporto, Portugal