FINCOPP

La Segreteria Nazionale della FINCOPP
Viale Orazio Flacco, 24
70124 – Bari
Tel: Centralino: 080-5093389
24 /24: 080-5619181
Email: finco@finco.org
Contact: Francesco Diomede
Position: Honorary President WFIP


PromoCon

PromoCon is an integral service of the charity Disabled Living North West, based in the UK.

It provides impartial information and advice to both healthcare professionals and the general public in relation to children and adults with bowel and/or bladder problems. We are recognised as the leading national / international source of information regarding continence products, equipment and services. We also provide high quality study days, tailor made training and the annual Continence Symposium. Working in partnership with industry, we offer a consultancy service in such areas as continence research and product development.

A range of free down-loadable resources, including the ‘Talk about…’ range for children, are available from the PromoCon website.

Helpline: +0044 (0)161 834 2001
Fax: +0044 (0)161 835 3591
Email: info@promocon.co.uk
Website: www.promocon.co.uk


Bladder Health UK

Kings Court, 17 School Road, Hall Green, Birmingham B28 8JG
Advice Line: 0121 702 0820
Contact person: Suzanne Evans
Position: Business Director
DD: 0121 702 0820/0821
Mob: 07860 515105
Email General: info@bladderhealthuk.org
E-mail: suzanne@bladderhealthuk.org
Website: www.bladderhealthuk.org


Disabled Living (PromoCon) Bladder and Bowel UK

Our address: Bladder and Bowel UK (formerly PromoCon), Disabled Living, Burrows House, 10 Priestley Road, Wardley Industrial Estate, Worsley, Manchester, M28 2LY
Contact person: Debra Evans
Position: Chief Executive
0161 607 8206
Telephone Helpline: 0161 607 8219
Fax: 0161 607 8201
Our general email address: bladderandboweluk@disabledliving.co.uk
Website:  www.bladderandboweluk.co.uk

Interstitial Cystitis Patients’ Association

http://www.icpatienten.nl/


The National Association For Continence (NAFC)

National Association For Continence is a national, private, non-profit 501(c)(3) organization dedicated to improving the quality of life of people with incontinence. NAFC’s purpose is to be the leading source for public education and advocacy about the causes, prevention, diagnosis, treatments, and management alternatives for incontinence www.nafc.org


The National Foundation for Continence

Contact person: Steven G. Gregg, PHD
Position: Executive Director
Email: Sgregg@nafc.org


The Simon Foundation for Continence

The Simon Foundation for Continence was founded in 1983 in the United States, followed in 1985 by Simon Canada (now called the Canadian Continence Foundation). The foundation is a 501(c)(3) organization. The mission of the Simon Foundation for Continence is to: “Bring the topic of incontinence out into the open, remove the stigma surrounding incontinence, and provide help and hope to people with incontinence, their families and the health professionals who provide their care.”


The Simon Foundation for Continence

Address: PO Box 815, Wilmette, IL, 60091, USA
Telephone Number: 1.847.864.3913
Email: bethlagro@simonfoundation.org
Website: www.simonfoundation.org
Contact person: Elizabeth A. LaGro, MLIS
Position: Vice President, Communications and Education Services


The Underactive Bladder Foundation

5836 Ferree ST
Allegheny County, Pittsburgh
PA 15217
USA
Contact: David Chancelllor B.S.
Position: Director and Treasurer
Website: www.underactivebladder.org

UROCONTI

www.uroconti.pl

UroConti Association brings together people with incontinence problems. It is a non-profit organization that has over 500 members. UroConti was founded in 2007 by a group of active people who wanted to help themselves and other patients experiencing the problem. Anyone who suffers from incontinence may be a member of the Association and actively participate in its activities. UroConti works to improve the life quality of patients with incontinence problem. Click here to view a recent study of the impact of urinary incontinence on social and economic costs in Poland.

The mission of UroConti Association is:

  • improve the quality of life for patients with a urinary incontinence (UI) problem;
  • provide support for patients with incontinence and their families;
  • spread knowledge on methods of treatment;
  • raise public awareness of UI;
  • cooperate with other patient organizations;
  • implement statutory tasks of the Association.

Members of the Association may:

  • participate in gymnastic exercises to strengthen their pelvic floor muscles (the classes are taught by experienced therapists),
  • attend open medical lectures conducted by doctors and other specialists,
  • receive advice from the medical consultants of the Association,
  • participate in activities that are aimed at improving the life quality of people with incontinence,
  • benefit from the knowledge and support of other members of the Association.

UroConti Association’s regional branches include:

  • Gdansk
  • Kielce
  • Lodz
  • Lublin
  • Poznan
  • Warsaw
  • Wroclaw

International Continence Society meeting 2009, Cairo, Egypt
In attendence at the meeting were Tomasz Michalek, Poland, and Nancy Muller, USA.


NTM Poland

‘To Live a Normal life’
Dyrektor Prograam NTM
Ul. Hajoty 49,
01-821 Warsaw
Contact: Thomasz Michalek
Position: Director
Website: www.ntm.pl

INCO FORUM

http://www.incoforum.cz

PhDr. Zdeněk Kučera, WFIP representative from the Czech Republic, at the 2010 Annual WFIP meeting in Italy.

Kontinensforeningen

http://www.kontinens.dk/

InkoForum

A voluntary, independent patient organization dedicated to help those suffering from incontinence. Our aim is to make everyone feel comfortable when speaking about incontinence.

What is the main content of our activities?

• provide advice to new patients who have just been diagnosed with the disease,

• inform patients about news in health care,

• contribute their experience and advice of the legislative process,

• establish collaboration between doctors and patients,

• spreading the awareness about the disease to the public …

We also provides a platform – forum for the exchange of experience, information, advice, and also to discuss among doctors, patients, relatives, government etc.

Executive Director: Marcia Lascekova

Email: info@inkoforum.sk

Website: www.inkoforum.sk


Inkoforum. Slowakje

Hardinov SNP 6
Martin,
Slowakije
Contact: Maria Lascekova
Position: Founder
Email: info@inkoforum.sk
Website: www.inkoforum.sk

Sinoba

http://www.sinoba.se/

Sinoba: The Association for Knowledge about Urinary Incontinence and Bladder Problems

Sinoba is a non-profit organization, founded in 2004. We include men and women of all ages as well as children.

Sinoba´s mission is to spread information about problems concerning urinary incontinence and other bladder problems and to raise awareness to get enough resources. Our vision is to create a community where everybody with problems of the bladder and urinary tract will get the healthcare they need, feel total social acceptance, and have a good quality of life.

Click here to view a study of Nordic Survey on Urinary Dysfunction 2011-2012

FINCOROM (Associaţiei Române Incontinenţi)

www.finco.org (FINCOROM’s Web site is currently under construction)

The Canadian Continence Foundation

http://www.canadiancontinence.ca/index.html

Founded in 1986, The Canadian Continence Foundation (formerly The Simon Foundation for Continence Canada) is the only canadian national non-profit organization serving the interest of people experiencing incontinence. The organization is led by people with incontinence and by professionals from all health disciplines. The Canadian Continence Foundation is supported by donations from the public healthcare professionals and private industry.

Contact Person: Jacqueline Cahill
E-mail: jcahill@canadiancontinence.ca

Malta Continence Care Association

http://www.mcca.org.mt
The Malta Continence Care Association is a non-profit organization, founded in 2007, dedicated in helping people with bowel and bladder incontinence.The members of the committee representing this association are from various spheres of health care, with the aim of providing a service that covers a holistic approach to towards continence care and promoting research into incontinence and other related problems. The MCCA provides professional and public awareness on the implications of incontinence and how this can be prevented. MCAA’s mission is to continually improve the quality of life of people with incontinence.Incontinence Services are housed within the Ministry of Education, Family, and Employment under the Ministry of Social Policy.


Japan Continence Action Society

http://www.jcas.or.jp/

JCAS focuses on the promotion of appropriate care management, prevention and treatment of voiding disorders, support, education, providing professional care to all people, and intelligence management provided with research and development. JCAS also works with businesses and aims to contribute to society so that everyone can have control of their bladder.

INCOCENTRAS is a non – profit organization, established in 2005.

Our aim is:

  • To consult incontinent people about the methods used to cure incontinence and teach incontinent people to live with incontinence if they can not be treated.
  • To raise awareness about incontinence among the society.
  • To improve the compensation of inco product for incontinent people.
  • To work with policy makers, raising the awareness of problem.
  • To represent incontinent people at state institutions.
  • To work with health institutions, to teach nurses about incontinence.

Uganda Network of AIDS Service Organizations (UNASO)

Contact person: Joshua Wamboga
Position: Executive Director
Board Chair Elect, International Alliance of  Patients’ Organizations (IAPO);A global Patient Voice
Tel: +256 414 274730  Mob: +256 755831021
Email: jwamboga@yahoo.com and Wamboga@unaso.or.ug
Website: www.unaso.or.ug


UGANDA ALLIANCE OF PATIENTS ORGANIZATION (UAPO)

Address: GAYAZA ROAD, KIWENDA, P.O BOX 16051, KAMPALA, UGANDA
Telephone Number: +256 776 009040 / +256 701 752 693774
Email: patientsorganization@gmail.com;
Contact person: AMANYA JOHN VIANNEY
jamanya21@gmail.com
Position: PROGRAM COORDINATOR

Patient Safety and Access Initiative of the India Foundation

F 9, 2nd Floor, Kailash Colony Greater Kailish, Enclave – 1
New Delhi
110048 Delhi India
Contact: Bejon Kumar Misra
Position: Founder Director, International Consumer Policy Expert
Email: bejonmisra@gmail.com
Mobile: +91-9311044424+91-9811044424 Phone & Fax: +91-11-40537140
www.consumerconexion.orgwww.safemedicinesindia.in

Associacao brasileira pela continencia B.C. Stuart

Contact: Ana Claudia Crotti Delmaschio
Position: Executive Secretary
Email: accrotti@gmail.com
www.incontinenciaurinariabcs.org


Affiliated Members:

Mário João Gomes

Head of Urogynecology, Neurourology, Urodynamics Unit

Urology Department – St. António Hospital Oporto, Portugal

Montserrat Espuña

Institut Clínic de Ginecologia, Obstetrícia i Neonatologia (ICGON)
Hospital Clinic of Barcelona